Making a difference means creating a landscape of change in how we approach rare disease resources for patients and caregivers. It starts with an understanding of what the everyday looks like - from the onset of symptoms, to diagnosis, to treatment, and beyond. Creating a guide for resources in wellness, patient navigation, and education will reimagine and empower the future for the rare disease community.
Providing financial support for patients and families who need assistance through unique partnerships with local hospital partners. This support is customized based upon patient and family needs.
Our Storytime & Activity Program provides fundamentals in learning and awareness of physical challenges and disabilities and embraces empathy and understanding while providing resources in wellness.
Caregivers take on an imperative role for their loved ones with rare diseases. We believe in funding efforts to provide wellness resources that include, fitness, nutrition, meditation and self-care.
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Spend half a day exploring Cashew Ridge Park by foot. This trek is an excellent choice if you don’t have time for a full-day or overnight trip. The early morning tour starts early enough to enjoy the sounds of the forest waking up. The afternoon tour finishes at dusk, so you can enjoy the quiet calm of the nighttime forest. Bring your own food and water. As your tour guide, I’ll help you disconnect from your everyday world, so you can immerse yourself in nature and reconnect with yourself.
A big thank you to WellSense Health Plan for helping sponsor our Rare Disease Awareness and Blood Drive Event! WellSense is a nonprofit health insurance company serving more than 700,000 members across Massachusetts and New Hampshire through Medicare, Individual and Family, and Medicaid plans.
Since November 2024, Circuit been offering affordable eco-friendly rides in Stoneham, Massachusetts. Circuit's all-electric shared vehicles reduce emissions and traffic congestion in your community while creating jobs and promoting local businesses. Ditch the car and catch a ride to and from Stoneham's favorite spots like the Redstone Shopping Center, Stone Zoo, Stoneham Arena, and more. Download the Circuit Transit Stoneham app to ride.
Circuit is now your local electric shuttle! Have a doctor's appointment and need a ride? They make getting around easier, greener, and more affordable. Learn more about areas that are currently serviced and download the app now.
Our affiliate partnership with WHOOP offers a unique way to donate to Caregiver Wellness by providing wearable technology that measures every activity so that caregivers can stay healthy. Purchase a WHOOP and receive a discount and 10% goes back to our foundation.
Every donation makes a significant impact for the rare disease community. We accept donations via our donation button at the top of our website or through our Foundation Directory below.
Is your company interested in becoming a program sponsor for a fundraising event or program? Send us an email!
Word of mouth is the best way to help us raise funds for patients and families affected by rare diseases. Help us spread the word with a podcast or media opportunity.
We have volunteer positions open in Wellness Advisory, Events, and Fundraising.
View our past events
photo credits from Harry Ehrlich Photograpahy
RAISING FUNDS FOR PATIENT & CAREGIVER RESOURCES FOR THOSE CHALLENGED WITH RARE DISEASES.
These critical funds will go towards wellness resources like nutritious meals, groceries, and daily wellness products and services needed for patients during their care.
Through our specially curated Amazon Book List dedicated to rare diseases, disorders, disabilities and beyond, every children's book purchased goes to Metro & Greater Boston public libraries, schools, and doctor's offices. We also host Storytime & Vision Board Sessions at after-school programs and libraries to educate and create awareness of differences and inspire health innovation for the next generation.
The Serenely Guided Foundation was founded by Sarah Woods in 2023 after her and her son were diagnosed with Hereditary Hemorrhagic Telangiectasia (HHT). During that time, Sarah noticed patients and caregivers often feel lost throughout the diagnostic journey in knowing what resources are available and how to access them in an easy way. By partnering with some of the world's most cherished brands and providing a direct line to nutrition, wellness, wearable devices, rare disease awareness, patient navigation, and education, Sarah became inspired to create a fresh new way of giving.