The Serenely Guided Foundation is a 501 (c)(3) organization dedicated to improving the lives of patients, families, caregivers and those affected by rare diseases. Our focus is providing easy access to resources in the areas of wellness, nutrition, and education. It's our mission to help guide the patient and caregiver journey with ease.
Our Support
Making a difference means creating a landscape of change in how we approach rare disease resources for patients and caregivers. It starts with an understanding of what the everyday looks like - from the onset of symptoms, to diagnosis, to treatment, and beyond. Creating a guide for resources in wellness, awareness, patient navigation, and youth education will reimagine and empower the future for the rare disease community.
Patient Resources
Providing support for patients and families who need assistance through unique partnerships with consumer brands and local hospital partners. This support is customized based upon patient and family needs.
Youth Education
Our Storytime & Workshop Program specially curated for grades K-12 provides fundamentals in learning and awareness of rare diseases, genetic testing, clinical trials as well as understanding physical challenges and disabilities while encouraging empathy and understanding.
Caregiver Wellness
Caregivers take on an imperative role for their loved ones with rare diseases. We believe in funding efforts to provide wellness resources that include fitness, nutrition, and self-care. Learn more through our latest partnerships with how you or someone you love can benefit.
AWARENESS
What is a Rare Disease?
A rare disease is defined as a condition that affects fewer than 200,000 people in the United States or 1 in 2,000 individuals worldwide. We support Rare Disease Day, a day for the world to raise awareness and generate change for the 300 million people worldwide living with a rare disease. Click the button below to learn more.
RESEARCH
What is a clinical trial and how can you find one?
A clinical trial is a research study that tests a new medical treatment, procedure, or device in humans to determine if the treatment is safe and effective. Stay tuned for news about our latest partnership that will inform and make finding clinical trials easier.
Youth Empowerment & Community Service
Classroom Learning & Volunteering
Looking to empower your class with outside learning about health and rare disease? Our 30-40 minute informational sessions are fun, interactive, and we bring in outside professionals and kids who are affected and tell about their journey. Schedule a session today! Looking to have your child volunteer at our next event? Email us for more information.
Rare Disease Awareness
& Blood Drive Event
On Saturday, February 1st we partnered with Boston Children's Hospital and WellSense Health Plan to host a Rare Disease Awareness & Blood Drive Event in Stoneham, MA. We gave out informational gift bags on rare diseases, which also contained local resources and ways to help bring awareness and support to patients in need of help with financial and nutritional resources. Also included were custom stress balls from 4imprint, which were part of a grant awarded to our foundation, as well as BCH t-shirts and first-aid kits by WellSense.
Rare Disease Awareness & Blood Drive Event
Thank you to our blood donors, sponsors, and volunteers!
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Thank you to our event sponsor!
A big thank you to WellSense Health Plan for helping sponsor our Rare Disease Awareness and Blood Drive Event! WellSense is a nonprofit health insurance company serving more than 700,000 members across Massachusetts and New Hampshire through Medicare, Individual and Family, and Medicaid plans.
Rare Disease & Volunteer Spotlight!
Meet Kinley! Kinley is a rare disease warrior. She is a Boston Children's Hospital patient who receives IVIG (intravenous immunoglobulin) every 3-4 weeks at BCH for a rare immunodeficiency. IVIG treatments involve infusing antibodies into a vein to strengthen the immune system. It's used to treat autoimmune disorders, infections, and immunodeficiency conditions. She’s currently in 8th grade and has been undergoing these treatments for nearly six years. Kinley shined as our Rare Disease Awareness & Blood Drive Event Volunteer and received a Serenely Guided Foundation Community Service Award for her time and dedication to our cause. Know a rare disease warrior who would like to be featured? Know a great volunteer in middle or high school? Help us bring awareness to rare diseases and the importance of volunteering in the community by sending us an email.
Get Involved! Together we can make a difference.
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Donations
Every donation makes a significant impact for the rare disease community. We accept donations via our donation button at the top of our website or through our Foundation Directory below.
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Sponsorships
Is your company interested in becoming a program sponsor for a fundraising event or program? Send us an email!
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Media
Word of mouth is the best way to help us raise funds for patients and families affected by rare diseases. Help us spread the word with a podcast or media opportunity.
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Work with us
We have volunteer positions open in Wellness Advisory, Events, and Fundraising.
Ride Circuit for free to your healthcare appoinments!
Since November 2024, Circuit been offering affordable eco-friendly rides in Stoneham, Massachusetts. Circuit's all-electric shared vehicles reduce emissions and traffic congestion in your community while creating jobs and promoting local businesses. Circuit is available on-demand in select locations like Stoneham, MA. They also cover rides to healthcare facilities like Winchester Hospital and other medical offices and urgent care and housing centers in Stoneham. You can also catch a ride to and from areas like the Redstone Shopping Center, Stone Zoo, Stoneham Arena, and more. Download the Circuit app to ride.
FEBRUARY 28th is RARE DISEASE DAY!
Did You Know?
- 300 million people worldwide are living with a rare disease.
- 5% of the world population is affected by a rare disease.
- There are 6,000+ identified rare diseases
- 70% of genetic rare diseases start in childhood.
- 72% of rare diseases are genetic.
- 1 in 5 cancers is rare.
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Flowers for Good
This month, we’re excited to amplify our partnership with Crayola Flowers by participating in the Flowers for Good campaign! When you design your dream bouquet at our custom Crayola Webshop, 10% of the sale goes to the Serenely Guided Foundation in order to advance our mission of supporting patients and caregivers affected by all rare diseases.
Introducing
SGFxWHOOP
Wearables for Caregivers
Our affiliate partnership with WHOOP offers a unique way to donate to Caregiver Wellness by providing wearable technology that measures every activity so that caregivers can stay healthy. Purchase a WHOOP and receive a discount and 10% goes back to our foundation.
View our past events
photo credits from Harry Ehrlich Photograpahy
2024 Fundraisers, Storytimes, and Public Events for Rare Disease Awareness
Donate a Book to our Storytime Program!
Through our specially curated Amazon Book List dedicated to rare diseases, disorders, disabilities and beyond, every children's book purchased goes to Metro & Greater Boston public libraries, schools, and doctor's offices. We also host Storytime & Vision Board Sessions at after-school programs and libraries to educate and create awareness of differences and inspire health innovation for the next generation.
Foundation Directory
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Candid.
Listed HereA nonprofit that provides the most comphrehensive data and insights about the social sector.
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PayPal Giving Fund
Support UsFind us on the PayPal Giving Fund - Helping people support their favorite charities online.
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Givebutter Fundraising
DonateWe are proud to feature fundraising campaigns with Givebutter.
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About Serenely Guided Foundation
Founder Story
The Serenely Guided Foundation was founded by Sarah Woods in 2023 after her and her son were diagnosed with Hereditary Hemorrhagic Telangiectasia (HHT). During that time, Sarah noticed patients and caregivers often feel lost throughout the diagnostic journey in knowing what resources are available and how to access them in an easy way. By partnering with some of the world's most cherished brands and providing a direct line to nutrition, wellness, wearable devices, rare disease awareness, patient navigation, and education, Sarah became inspired to create a fresh new way of giving.