Making a difference means creating a landscape of change in how we approach rare disease resources for patients and caregivers. It starts with an understanding of what the everyday looks like - from the onset of symptoms, to diagnosis, to treatment, and beyond. Creating a guide for resources in wellness, patient navigation, and education will reimagine and empower the future for the rare disease community.
Providing financial support for patients and families who need assistance through unique partnerships with local hospital partners. This support is customized based upon patient and family needs.
Our Storytime & Activity Program provides fundamentals in learning and awareness of physical challenges and disabilities and embraces empathy and understanding while providing resources in wellness.
Caregivers take on an imperative role for their loved ones with rare diseases. We believe in funding efforts to provide wellness resources that include, fitness, nutrition, meditation and self-care.
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Our affiliate partnership with WHOOP offers a unique way to donate to Caregiver Wellness by providing wearable technology that measures every activity so that caregivers can stay healthy. Purchase a WHOOP and receive a discount and 10% goes back to our foundation.
Join us on August 31st from 12-5pm at Loco Taqueria & Oyster Bar in South Boston for a day of fun and margaritas. $1 from every Beach Bum Margarita sold will benefit the foundation. We can't wait to see you there! Register via the registration button below. Can't make it? All month long, Loco Taqueria in South Boston is offering the Beach Bum on the menu so place an order for us.
Every donation makes a significant impact for the rare disease community. We accept donations via our donation button at the top of our website or through our Foundation Directory below.
Is your company interested in becoming a program sponsor for a fundraising event or program? Send us an email!
Word of mouth is the best way to help us raise funds for patients and families affected by rare diseases. Help us spread the word with a podcast or media opportunity.
We have volunteer positions open in Wellness Advisory, Events, Telehealth, and Fundraising.
RAISING FUNDS FOR PATIENT & CAREGIVER RESOURCES FOR THOSE CHALLENGED WITH RARE DISEASES.
These critical funds will go towards wellness resources like nutritious meals, groceries, and daily wellness products and services needed for patients during inpatient care.
Through our specially curated Amazon Book List dedicated to rare diseases, disorders, disabilities and beyond, every children's book purchased goes to Metro & Greater Boston public libraries, schools, and doctor's offices. We also host Storytime & Vision Board Sessions at after-school programs and libraries to educate and create awareness of differences and inspire health innovation for the next generation.
The Serenely Guided Foundation was founded by Sarah Woods in 2023 after her 3-year journey to diagnosis with Hereditary Hemorrhagic Telangiectasia (HHT) and Hemochromatosis. During that time, Sarah noticed patients and caregivers often feel lost throughout the diagnostic journey in knowing what resources are available and how to acess them in an easy way. By partnering with some of the world's most cherished brands and providing a direct line to nutrition, wellness, wearable devices, patient navigation, and education, Sarah became inspired to create a fresh new way of giving. Largely, it's Sarah's personal experience with uncovering a family line of 3 generations with HHT which is driving her to recreate a landscape of easier access to resources for the rare disease community.